Nu är första studien i Sanes projekt där vi samarbetat med Stockholms universitet publicerad. Om stress hos föräldrar till barn med PANS.
Understanding parental stress among parents of children with Paediatric Acute-onset Neuropsychiatric Syndrome (PANS) in Sweden
Noam Ringer & Lise Roll-Pettersson
Article: 2080906 | Accepted 18 May 2022, Published online: 26 May 2022
The analysis of interviews identified five categories of parents’ experiences of stress related to:
- being effected by the symptoms
- experiencing the symptoms over and over again
- having no control
- obtaining medical treatment is challenging
- managing problems
the study illuminates how parents’ perceptions of the child’s symptoms, parents’ strategies for managing problems, as well as experiences related to healthcare providers, may increase or decrease parental stress.