SANE Sweden 2019 PANS Conference

Pooling Knowledge – Moving Forward

Take part of the filmed lectures here

SANE hosted an international conference on PANS and immunopsychiatry in Malmö, Sweden October 3rd-4th 2019. The conference was the final phase of a three-year project mainly financed by Arvsfonden (the Swedish Heritage Fund).

An important aspect of the project is to spread the information and make sure the results of the project can continue to make a difference after the project has ended. We are happy to announce that almost all lecturers agreed to have their lectures filmed and posted online .

You can watch the videos here in the order they appeared at the conference. We suggest you start with the first one as we specifically asked the first lecturer to give an overview over the definition of PANS, for the purpose of avoiding to much repetition in the following presentations. Please note that due to unpublished data one of the lectures is without visible slides (Dr. Agalliu’s), and in another one (Dr. Pollak’s) a part of the lecture has been cut out. It may take up to a week for Youtube to show the films in full HD so if you are watching them the first week, they will have poor quality.

The conference had an exhibition that featured the artwork and written work produced by both children with PANS and their siblings. You can see the exhibition online here.

A photo gallery of pictures from the conference can be found here.

We dare to say the conference was a complete success and it did certainly meet all our goals and exceeded our expectations. We did an extensive evaluation of the conference, which you can read as a pdf-file here.

Logotyp i svart-vitt med text Arvsfonden

This conference was arranged with main support from Arvsfonden (Swedish Inheritance Fund).

 

 

 

Conference Day 1

DEFINITION OF PANS/PANDAS: SYMPTOMS, GRADES OF SEVERITY AND TYPES OF DISEASE TRAJECTORIES
Kiki Chang, MD, Child, Adolescent, and Adult Psychiatrist; Former Professor of Psychiatry, Stanford School of Medicine; Co-Founder Stanford PANS Clinic, USA.
Moderator: Nedjma Chaouche

 

EVIDENCE FOR INFLAMMATION IN PANS–A RHEUMATOLOGIST’ PERSPECTIVE
Jennifer Frankovich, MD, MS, Pediatric Rheumatologist, Clinical Associate Professor Lucile Packard Children’s Hospital Stanford, Director of PANS Program, Stanford Children’s Health, US
Moderator: Nedjma Chaouche

 

DISORDERED EATING IN CHILDREN AND ADOLESCENTS WITH PANS
Cynthia Kapphahn, MD, MPH, Clinical Professor, Division of Adolescent Medicine, Stanford University School of Medicine; Medical Director, Eating Disorders Program, Lucile Packard Children’s Hospital, USA.
Moderator: Nedjma Chaouche

 

PANS AND MOOD DISORDERS–OVERLAP OF NEUROCIRCUITRY AND IMPLICATIONS FOR TREATMENT
Kiki Chang, MD, Child, Adolescent, and Adult Psychiatrist; Former Professor of Psychiatry, Stanford School of Medicine; Co-Founder Stanford PANS Clinic, USA.
Moderator: Nedjma Chaouche

 

DEVELOPING SUPPORT FOR PANS FAMILIES
Katrin Pettersson, Social worker, Operations manager, SANE – Förbundet autoimmune encefaliter med psykiatrisk presentation, Sweden.
Moderator: Nedjma Chaouche

 

ABERRANT IMMUNE AND NEURONAL INTERACTIONS IN POST-INFECTIOUS AUTOIMMUNE ENCEPHALITIS – LESSONS FROM ANIMAL STUDIES
Dritan Agalliu, PhD, Assistant Professor, Departments of Neurology, Pathology and Cell Biology, Pharmacology, Columbia University Irving Medical Center, USA. Note: the slides are not available in this video due to unpublished data.
Moderator: Nedjma Chaouche

 

IMMUNOPSYCHIATRY: STUDYING INFLAMMATORY RESPONSE IN PSYCHIATRIC DISORDERS – FINDINGS FROM ÖREBRO UNIVERSITY
Daniel Eklund, Assistant Professor in Medical Microbiology at Örebro University, Inflammatory Response and Infection Susceptibility Centre (iRiSC), Sweden.
Moderator: Nedjma Chaouche

 

ACUTE ONSET DEVASTATING PSYCHIATRIC DISORDER IN CHILD AND ADOLESCENT POPULATIONS: PANS, SCHIZOPHRENIA; ENCEPHALITIS OR WHAT?
Christopher Gillberg, MD, Professor of Child and Adolescent Psychiatry, University of Gothenburg, Sweden.
Moderator: Nedjma Chaouche

 

PANS IN ADULTS – ARE THERE ANY BOUNDARIES?
Susanne Bejerot, MD, PhD, Professor of Psychiatry, Örebro University, Sweden.
Moderator: Nedjma Chaouche

 

PANS AND PANDAS – BIOMARKERS AND DIAGNOSTICS
Eva Hesselmark, PhD-student, Karolinska insitutet, Stockholm, Sweden.
Moderator: Nedjma Chaouche

 

PERSPECTIVES ON PANS PART 1: A PARENT’S PERSPECTIVE
Kristin Granli, Chair of SANE, Norway
Moderator: Gunilla Gerland

 

PERSPECTIVES ON PANS PART 2:
A PARENT’S PERSPECTIVE – Birgitta Aupeix
MUSIC – Amandine X
Note: Music by Amandine X can be found at Spotify, Amazon etc.
Moderator: Gunilla Gerland

 

Conference Day 2

AUTOIMMUNE ENCEPHALITIS IN AUTISM: CONNECTION WITH PANS AND PANDAS
Richard Frye, MD, Child Neurologist, Professor at Phoenix Children’s Hospital; Chief, Neurodevelopmental Disorders; Director, Autism Program Barrow Neurological Institute, USA.
Moderator: Nedjma Chaouche

 

CNS AUTOIMMUNITY AND INFECTION IN PSYCHOTIC DISORDERS
Tom Pollak, PhD MRCPsych, Clinical Lecturer and general adult psychiatrist, Department of Psychosis Studies, Institute of Psychiatry, Psychology and Neuroscience, King’s College London, United Kingdom. Note: A case report has beeen cut out of the video, you can read this case report here.
Moderator: Nedjma Chaouche

 

PAEDIATRIC ACUTE-ONSET NEUROPSYCHIATRIC SYNDROME (PANS) & OCCUPATIONAL PERFORMANCE: WHAT DO WE KNOW SO FAR?
Michelle Newby, BHSc(OT), MSc, PhD-student (Occupatio- nal Therapy), University of Newcastle, Reg. Occupational Therapist, Clinical Director of Stepping Stones Therapy for Children Newcastle, Australia.
Moderator: Nedjma Chaouche

 

LINKS BETWEEN PANS, POTS AND JOINT HYPERMOBILITY, HSD
Markku Partinen, MD, Neurologist, Research Director of the Helsinki Sleep Clinic, Vitalmed Research Centre; Professor in Neurology, University of Helsinki, Finland.
Moderator: Nedjma Chaouche

 

THE GOTHENBURG EXPERIENCE OF INTRAVENOUS IMMUNOGLOBULIN TREATMENT FOR PANDAS/PANS
Anders Fasth, MD, Professor in Immunology, Department of Pediatrics at Institute of Clinical Sciences, University of Gothenburg, Sweden.
Moderator: Nedjma Chaouche

 

EXPERIENCES FROM A SWEDISH SPECIALIZED PANS-TEAM
Caroline Gromark, MD, Child and adolescent Psychiatry specialist, BUP OCD and related disorders, CAP Research Center, Sweden.
Moderator: Nedjma Chaouche

 

IMPORTANT NOTE:

Due to a misunderstanding, we are missing one lecture. It will soon be posted here.
Check back in a week or so, to see this lecture:
THE UPPSALA IMMUNOPSYCHIATRY CLINIC: CLINICAL PANORAMA, DIFFERENTIAL DIAGNOSTICS AND RITUXIMAB TREATMENT IN ADULTS  by Janet L. Cunningham, MD, PhD, Associate Professor and Adult Psychiatrist, Dept. Of Neurosciences, Psychiatry, Uppsala University, Sweden. You certainly dont want to miss it!

 

DEVELOPING A PANDAS & PANS SERVICE – THE UNITED KINGDOM EXPERIENCE
Tim Ubhi, MD, Consultant paediatrician & fellow of the Royal college of paediatrics & child health. Childrens e-hospital, United Kingdom.
Moderator: Nedjma Chaouche

 

PANEL DISCUSSION

Panel Members (from left to right):
Dritan Agalliu, PhD, Assistant Professor, Departments of Neurology, Pathology and Cell Biology, Pharmacology, Columbia University Irving Medical Center, USA.

Tom Pollak, PhD MRCPsych, Clinical Lecturer and general adult psychiatrist, Department of Psychosis Studies, Institute of Psychiatry, Psychology and Neuroscience, King’s College London, United Kingdom.

Jennifer Frankovich, MD, MS, Pediatric Rheumatologist, Clinical Associate Professor Lucile Packard Children’s Hospital Stanford, Director of PANS Program, Stanford Children’s Health, USA.

Susanne Bejerot, MD, PhD, Professor of Psychiatry, Örebro University, Sweden.

Richard Frye, MD, Child Neurologist, Professor at Phoenix Children’s Hospital; Chief, Neurodevelopmental Disorders; Director, Autism Program Barrow Neurological Institute, USA

Anders Fasth, MD, Professor in Immunology, Department of Pediatrics at Institute of Clinical Sciences, University of Gothenburg, Sweden.

Kiki Chang, MD, Child, Adolescent, and Adult Psychiatrist; Former Professor of Psychiatry, Stanford School of Medicine; Co-Founder Stanford PANS Clinic, USA.

Moderators: Nedjma Chaouche & Gunilla Gerland

 

SANE is a Swedish Non-profit organization. Do you want to support our work, and help make future conferences and meetings possible? Make a donation to SANE!
BANK: Handelsbanken (Bank adress: Odengatan 49, 113 51 Stockholm, Sweden)
BIC/IBAN: HANDSESS / SE58 6000 0000 0007 1608 5798.
Clearing: 6133 Account: 716 085 798 716 085 798.
Please, mark your payment ”donation” or ”gift”.

Donations from Sweden: Please use Swish 123 321 2404 or bankgiro 157-7956. Mark the payment ”donation” or ”gåva”.

 

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The conference was funded by Arvsfonden

Svartvit logotyp med text Arvsfonden

Supported by vetenskapsrådet, The Swedish Research Council

logga vetenskapsrådet

 

 

 

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