SANE Sweden 2019 PANS Conference

This conference is arranged with main support from Arvsfonden (Swedish Inheritance Fund).

Logotyp i svart-vitt med text Arvsfonden

Supported by vetenskapsrådet,
The Swedish Research Council

Pooling Knowledge – Moving Forward

UPDATE: The conference is now over, and we want to thank all our partners, the lecturers, and the delegates. Together we made something really special. This page will soon be turned into a page with information about, and pictures from the conference, as well as the filmed lectures. We are working on it!

The attendees who are waiting for powerpoint-slides, be patient. We are waiting for all the speakers to mail them to us, and then we will mail them to you. You will get an email with the slides (and no, if you did not attend, you will not get the slides, but you will be able to see the filmed lectures. As soon as they are ready.)

SANE Sweden is proud to announce a two-day conference on PANS and PANDAS and related conditions, will take place in Malmo, Sweden, Thursday 3 & Friday 4 October, 2019.

The conference will pool current knowledge and set the pathway for new knowledge.

The conference venue is easily reached by flying into Copenhagen and then taking a short (approximately 15 minutes) train journey, directly from the airport to the venue in Malmo. Read more about travel options below.

The nearest hotel is the Best Western Malmo Arena hotel, located just across the street from Malmömässan, the conference venue.

All delegates are invited to a buffet dinner on Thursday evening, which is included in the registration fee. This is an opportunity for attendees to mingle and network.

Lipus has reviewed and approved this conference. The complete conference description is available at www.lipus.se.

Lipus har granskat och godkänt denna konferens. Fullständig beskrivning finns på www.lipus.se (Lipus-nr: 20180133)

 

DOWNLOAD CONFERENCE FLYER PDF HERE.

THE REGISTRATION IS NOW CLOSED

Contact info@forbundetsane.se if you have any questions

Confirmed speakers and topics:

DEFINITION OF PANS/PANDAS: SYMPTOMS, GRADES OF SEVERITY AND TYPES OF DISEASE TRAJECTORIES
Kiki Chang, MD, Child, Adolescent, and Adult Psychiatrist; Former Professor of Psychiatry, Stanford School of Medicine; Co-Founder Stanford PANS Clinic, USA.

AUTOIMMUNE ENCEPHALITIS IN AUTISM: CONNECTION WITH PANS AND PANDAS
Richard Frye, MD, Child Neurologist, Associate professor at Arizona Children’s Hospital in Phoenix; Chief, Neurodevelopmental Disorders; Director, Autism Program Barrow Neurological Institute , USA

ABERRANT IMMUNE AND NEURONAL INTERACTIONS IN POST-INFECTIOUS AUTOIMMUNE ENCEPHALITIS – LESSONS FROM ANIMAL STUDIES
Dritan Agalliu, PhD, Assistant Professor, Departments of Neurology, Pathology and Cell Biology, Pharmacology, Columbia University Irving Medical Center, USA.

EVIDENCE FOR INFLAMMATION IN PANS – A RHEUMATOLOGIST’S PERSPECTIVE
Jennifer Frankovich, MD, MS, Pediatric Rheumatologist, Clinical Associate Professor Lucile Packard Children’s Hospital Stanford, Director of PANS Program, Stanford Children’s Health, USA.

LINKS BETWEEN PANS, POTS AND JOINT HYPERMOBILITY, HSD
Markku Partinen, MD, Neurologist, Research Director of the Helsinki Sleep Clinic, Vitalmed Research Centre, Professor in Neurology, University of Helsinki, Finland.

SANE is a Swedish non-profit organization

DISORDERED EATING IN CHILDREN AND ADOLESCENTS WITH PANS
Cynthia Kapphahn, MD, MPH, Clinical Professor, Division of Adolescent Medicine, Stanford University School of Medicine; Medical Director, Eating Disorders Program, Lucile Packard Children’s Hospital, Stanford, USA

CNS AUTOIMMUNITY AND INFECTION IN PSYCHOTIC DISORDERS
Tom Pollak, PhD MRCPsych, Clinical Lecturer and general adult psychiatrist, Department of Psychosis Studies, Institute of Psychiatry, Psychology and Neuroscience, King’s College London, United Kingdom.

IMMUNOPSYCHIATRY: STUDYING INFLAMMATORY RESPONSE IN PSYCHIATRIC DISORDERS – FINDINGS FROM ÖREBRO UNIVERSITY
Daniel Eklund, Assistant Professor in Medical Microbiology at Örebro University, Inflammatory Response and Infection Susceptibility Centre (iRiSC), Sweden.

ACUTE ONSET DEVASTATING PSYCHIATRIC DISORDER IN CHILD AND ADOLESCENT POPULATIONS: PANS, SCHIZOPHRENIA; ENCEPHALITIS OR WHAT?
Christopher Gillberg, MD, Professor of Child and Adolescent Psychiatry, University of Gothenburg, Sweden.

PANS IN ADULTS – ARE THERE ANY BOUNDARIES?
Susanne Bejerot, MD, PhD, Professor of Psychiatry, Örebro University, Sweden.

PANS AND MOOD DISORDERS – OVERLAP OF NEUROCIRCUITRY AND IMPLICATIONS FOR TREATMENT
Kiki Chang, MD, Child, Adolescent, and Adult Psychiatrist; Former Professor of Psychiatry, Stanford School of Medicine; Co-Founder Stanford PANS Clinic, USA.

CATATONIA AND AUTOIMMUNE CONDITIONS IN CHILDREN AND ADOLESCENTS: NEW CHALLENGES
David Cohen, MD, PhD, Professor Université Pierre et Marie Curie; Head of the department of Child and Adolescent Psychiatry, La Salpêtrière hospital, France.

THE GOTHENBURG EXPERIENCE OF INTRAVENOUS IMMUNOGLOBULIN TREATMENT FOR PANDAS/PANS
Anders Fasth, MD, Professor in Immunology, Department of Pediatrics at Institute of Clinical Sciences, University of Gothenburg, Sweden.

DEVELOPING A PANDAS & PANS SERVICE – THE UNITED KINGDOM EXPERIENCE
Tim Ubhi, MD, Consultant paediatrician & fellow of the Royal college of paediatrics & child health. Childrens e-hospital, United Kingdom.

THE UPPSALA IMMUNOPSYCHIATRY CLINIC:  CLINICAL PANORAMA, 
DIFFERENTIAL DIAGNOSTICS AND RITUXIMAB TREATMENT IN ADULTS
Janet L. Cunningham, MD, PhD, Associate Professor and Adult Psychiatrist, Dept. Of Neurosciences, Psychiatry, Uppsala University,. Unit for Affective Disorders and Unit for Brain Stimulation and Psychiatric Clinical Trials, Uppsala University Hospital, Sweden.

EXPERIENCES FROM A SWEDISH IMMUNOPSYCHIATRY TEAM – YOUNG PATIENTS ON THE BOUNDARY BETWEEN PSYCHIATRY AND NEUROLOGY
Caroline Gromark, MD, Child and Adolescent Psychiatry specialist, CAP Research Center, Sweden.

PANS AND PANDAS – BIOMARKERS AND DIAGNOSTICS
Eva Hesselmark, PhD-student, Karolinska insitutet, Stockholm, Sweden.

Seminars aimed at parents:

STRENGTHENING YOUR CHILD’S HEALTHY FOUNDATION
Amy Smith, Nurse Practitioner, Integrative Medical Institute of Orange County, Orange Ca, USA .

CREATING CALM: SUPPORTING YOUR PANS CHILD’S SENSORY NEEDS AT HOME AND SCHOOL
Michelle Newby, BHSc(OT), MSc, PhD-student (Occupational Therapy), University of Newcastle, Reg. Occupational Therapist, Clinical Director of Stepping Stones Therapy for Children Newcastle, Australia.

 

All delegates are invited to a buffet dinner on Thursday evening, which is included in the registration fee. This is an opportunity for attendees to mingle and network.

Download the Conference Agenda.

Practical information

The conference starts with registration 8:15 am Thursday October 3 and ends around 5:30 pm Friday October 4. A detailed program will be sent out as pdf to the delegates before the conference.

PARTNERS:

 

 

 

 

Venue

The Conference will be held at Malmömässan, an exhibition and convention centre in the Hyllie area. Malmö. Here you can find practical information about the venue.

Hotel

A number of discount priced hotel rooms can be booked at Best Western Malmö Arena Hotel, by following the link. You need to fill the dates for your stay in order to see rooms available. Please note that you can only book one room at a time here. This offer is valid until September 1. From September 2 rooms can be booked at a regular price. Please use this link for regular price: Best Western Malmö Arena Hotel.

There is another hotel very near Malmömässan, Quality Hotel View. In the central area of Malmö there are many hotels in different price categories. The train is 8 minutes from Malmö Station to the venue (Hyllie station), and the bus is 20 minutes.

Travel options

The conference venue is easily reached by flying into Copenhagen airport (CPH) and then taking a short (approximately 20 minutes) train journey, directly from the airport to the venue in Malmo (Hyllie station). Another possibility is o fly into Malmo airport (MMX), and from there take the bus to central Malmo (approximately 45 minutes), change to another bus (20 minutes) or train (10 minutes) to the Hyllie station where the venue is located. Malmo can also be reached by train and ferry from some countries.

Registration

We welcome health and care professionals in all fields, and reserchers as well as parents of children with PANS and related disorders, adults with PANS, and the interested public to this conference. Parallel lectures specifically aimed at parents will be held during one afternoon.

Register here and please note that you can only register one delegate at the time.

Registration fees

19-09-21 REGISTRATION IS NOW CLOSED

Contact info@forbundetsane.se if you have any questions.

EARLY BIRD DISCOUNTED FEE

September 9, 2018–February 28, 2019
SEK 1900

REGULAR FEE

March 1–September 20, 2019
SEK 2400

Registration fees include attendance to all sessions, conference material, lunches and refreshments in the breaks during the conference days, and a buffet dinner on Thursday evening.

 

VAT information: There is no VAT on our fees since we are a NGO/Charity

Download Conference flyer pdf here.

Method of payment

All payments should be made in Swedish krona (kr/SEK). If you are buying a ticket for someone else, make sure to write the name and email address of the actual delegate in the check-out area. You can only buy one ticket at a time. All bank transfer charges in connection with transferring fees are to be paid by the delegate.

Payment can be made by the following method: Credit card – Visa, MasterCard or American Express. Please note that all credit card payments are made through secure and encrypted online payment gateway. Invoice can be offered only to Swedish delegates, but we prefer payment by credit card. Contact info@forbundetsane.se for more information about invoice.

Cancellation of registration

We regret that cancellation is not possible. If you cannot attend the conference however, your registration is transferable to another member of your organisation. All changes should be done in written form to: info@forbundetsane.se

illustration of young person with hands holding.

 

The conference is funded by Arvsfonden

Svartvit logotyp med text Arvsfonden